Caregiver Focused Organizations

  • AARP: Family Caregiving "How-To" videos
    Dementia Friends Overview
    • This website provides a number of Family Caregiver “How-To” videos. The videos and resource guides for family caregivers are on specific medical/nursing tasks – including preparing special diets, managing incontinence, wound care, mobility, and managing medications. The videos and resource guides, many of which are available in both English and Spanish, are available free of charge
  • AGS Health in Aging: "Caregiver Guides"
    • ​​​​​​​These Caregiver Guides cover over 25 topics, giving guidance and providing clear, practical instructions for dealing with common caregiving problems
  • Best Practice Caregiving: Evidence-Based Dementia Programs
    • ​​​​​​​​​​​​​​Best Practice Caregiving is a free online database of proven dementia programs for family caregivers. 
  • Elder Diverse Coalition
    • This website provides information for Family Caregivers for diverse groups of older adults, including African American Caregivers, American Indiana and Alaska Native Caregivers, Asian American Caregivers, Hispanic Caregivers, LGBTQ+ Caregivers, and Southeast Asian American Caregivers.  
  • Family Caregiver Alliance
    • This website provides a general overview of caregiving- types of caregivers, how to become a new caregiver, national trends in caregiving, impacts of caregiving, need for caregivers to have support, etc.
  • GeriatricPain.org: Family Caregivers
    • The information provided on this website can serve as a roadmap to assist family caregivers in understanding the most effective ways to communicate with their loved one’s healthcare team about pain. 
  • National Alliance for Caregiving: Caregiving in the US
    • ​​​​​​​​​​​​​​"First conducted in 1997 by the National Alliance for Caregiving and AARP, the Caregiving in the US studies are widely regarded as one of the most authoritative resources available to describe the American caregiver."
  • Taking Care: Managing Dementia with Dignity
    • This caregiver guide was created "in an effort to provide much-needed guidance to caregivers struggling with the day-to-day challenges of living with dementia. It is intended to help the person with dementia and their caregiver understand the basic principle of diagnosing, managing, and living with this disease." 
  • Today's Caregiver: Care for the Caregiver
    • Articles and resources to provide support for caregivers.
  • U.S. Department of Veterans Affairs: Support for Caregivers
    • "The Department of Veteran Affairs (VA) Caregiver Support Program (CSP) offers clinical services to caregivers of eligible and covered Veterans enrolled in the VA healthcare system. The program’s mission is to promote the health and well-being of family caregivers who care for our Nation’s Veterans, through education, resources, support, and services." 
  • U.S. National Library of Medicine: Caregivers
    • ​​​​​​​Caregiving guides and resources curated by the U.S. National Library of Medicine.
  • Well Spouse Association
    • "Well Spouse Association provides support and resources to people of all ages who care for partners with chronic illness or disability." 
  • 2022 National Strategy to Support Family Caregivers 
    • A roadmap to improved services and support for family caregivers. This initial strategy builds on recommendations outlined by the RAISE Act Family Caregiving Advisory Council and the Advisory Council to Support Grandparents Raising Grandchildren.

Webpage last updated 10.17.2023